Entry: Reminder:This is an information site only Saturday, October 10, 2009



We are fortunate to have studies and doctors out there who have done some studies on this disease known as Hypo-para-thyroidism. As we all know we have to look hard on the internet or go to our own [ James Sanders ] who lead us to places like NIH or other hospitals who might be doing a protocal in hopes of finding a solution or answer to help in retaining the parathyroid hormone.
We here do not give answers, instead I provide others articles , web sites and thoughts because that is what we have now. The people who have done studies on this disease have worked hard on their papers and gave as much information that they had at their hands for that time ,OF COURSE some of the matterial is now dated and we are seeing a few improvements as far as probably being able to inject a parahormone similar to that of insulin like a diabetic does. problem right now however is expense .
James has a questionaire going on right now for surgicals and there is a protacal going on at NIH in October 2009 for 8 folks . I do not qualify. I have gastric issues . Look up on their web site and call the folks there regarding what the qualifications are.
We are a very good bunch of folks who fight a good arguement for honor that is sure. The UK chapter amazes me . I read Liz's web all the time. I need to go visit her sometime soon.  James of course is our founder there are no words there. Indiana chapter is always doing something . ALL of us wait and all of us provide what we have in front  of us ,, the knowledge of a doctor or student that hopefully will write a paper taht we can put up on one of our web sites and say "look he/she saved us" I will always put up all their knowledge no matter what .. because they matter and we need them  and we absolutely are the key to whatever is the answer.. so we will wait.

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